Spina Bifida Association of Colorado

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Spina Bifida Association of Colorado

Who We Are

The CSBA was primarily formed as a support group for Colorado parents, family, and friends of children with Spina Bifida. Over the years, our organization has grown and expanded to include many adults with Spina Bifida as well. Assistance and information is also provided to people from Kansas, Nebraska, and Wyoming when they come to The Children's Hospital of Denver for clinics and treatment

Espanol

Le damos la bienvenida a cualquier persona que tenga inter?©s en aprender sobre Espina Bifida y de sus varios aspectos. Al estudiante que esta escribiendo un papel de investigaci?³n en la escuela, a los padres de un reci?©n nacido con Espina Bifida, a un adulto que se le acaba de diagnosticar con Espina Bifida oculta, al igual que a los m?©dicos profesionales que est?¡n buscando mas recursos para sus pacientes ?– todos son bienvenidos a revisar este sitio web, poner avisos o noticias y tambi?©n a ofrecer informaci?³n en nuestros tableros de mensajes. La Mesa Directiva de la asociaci?³n queremos que este sitio web sea un recurso invaluable y un instrumento educativo para esa gente interesada en Espina Bifida y en otros defectos de nacimiento relacionados con la espina dorsal y con el sistema nervioso.

Si usted habla espa?±ol y quiere saber mas informaci?³n la Asociaci?³n de Colorado de Espina Bifida, por favor llame al 303-797-7870 y deje mensaje. Mandaremos su mensaje a un miembro que habla espa?±ol y que les pueda ayudar con sus preguntas.

Gracias
Jesus Gabriel Arroyo
Asociaci?³n de Colorado de Espina Bifida

What is Spina Bifida

Despite its frequent occurance, many people have never heard of Spina Bifida. But more children are affected by this condition than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Approximately one out of every 1,000 newborns in the United States are affected when the vertebrae or individual bones that make up the backbone and enclose the spinal cord do not close as usual. Instead, one or more of these vertebrae remain open, leaving that section of the spine exposed and unprotected. A bulge called a myelomeningocele can form in this open area which causes damage to these vital spinal nerves. Although the opening can occur at any level along the spine, it usually occurs in the lower spinal region. The damaged nerves lead to varying degrees of paralysis of the lower limbs, and bowel and bladder complications. Most children and adults with Spina Bifida use braces, crutches, or wheelchairs for mobility. Bowel and Bladder complications are almost alway present in a person affected by Spina Bifida